Executive Director

Remote
Full Time
Global Vitiligo Foundation
Executive

Executive Director

Global Vitiligo Foundation
 

(Remote work)

 

Background

The mission of the Global Vitiligo Foundation (GVF) is to improve the quality of life for individuals with vitiligo through education, research, clinical care, and community support. Founded in 2016 by a group of doctors, GVF is a young organization with big aspirations to help people with this autoimmune skin disease that causes depigmentation.

Vitiligo affects nearly 1% of the population, including both genders and all races and ethnicities. About half of those with vitiligo develop it before age 20. The precise cause is not well understood, but is believed to be a combination of genetic and environmental factors. There is currently no cure, but more worldwide research is being conducted than ever before and treatment options are improving.

GVF focuses its efforts on awareness, education and support, with the aim of helping people live well with vitiligo. It has a Medical Advisory Board that includes some of the top vitiligo experts from around the world. In exciting recent news, the FDA approved the first drug to treat vitiligo in July 2022 and there will be significant funding from pharmaceutical companies in the space. The annual budget is less than $1 million, but GVF is seeking to increase the budget significantly in order to bring about its vision of a world where the burden of vitiligo is eliminated through compassion, care, and cure. For more information about GVF, please visit the website at GlobalVitiligoFoundation.org.

Position Summary

The Global Vitiligo Foundation is seeking to hire its first-ever Executive Director to lead the organization to the next level. This individual must be a highly self-motivated people-person, and able to multi-task in a variety of areas including strategic planning, revenue generation, financial management, organizational development, staff management, and program operations. This is a full-time, remote-work position.

Responsibilities

  • Leadership: Work with the Board of Directors, staff, contractors and key constituents to make its stated Mission and Vision come to life.
     
  • Development: Be the driving force in fundraising, both at the large sponsor level and creating and implementing a plan for individual donors.
     
  • Community Relations & Communications: Be the outward face to the vitiligo community, pharmaceutical industry sponsors and the public. Through outreach and advocacy, be the liaison between stakeholders, cultivating relationships with support group leaders, the medical community and pharmaceutical company representatives.
     
  • Program, Staff & Financial Management: Manage day-to-day operations and program execution, supervise a small team, and develop the annual budget.
     
  • Compliance: Ensure GVF stays in compliance with all applicable laws and regulations.

Professional Qualifications & Personal Characteristics

  • Passion for the mission of GVF and heartfelt compassion for those afflicted with vitiligo.
  • A proven track record of nonprofit management, with excellent organizational and team-building skills. Specific experience with autoimmune disease is a plus.
  • Demonstrated success in fundraising, including individual giving, corporate funding, and grant writing. Prior experience with a health care or disease-focused organization and/or national corporate sponsorship solicitation is a strong plus.
  • Excellent interpersonal and communication skills, with impeccable judgment and ability to work with all kinds of people.
  • Ability to build rapport and work effectively and diplomatically in partnership with a volunteer non-profit board, medical advisory board and support groups.
  • Ability and willingness to travel an estimated 20% of time.
  • Minimum of a bachelor’s degree from an accredited college or university.

Location & Compensation

This is a remote-work position, so the successful candidate could be located anywhere in the U.S. Salary is commensurate with experience.

Non-Discrimination

The Global Vitiligo Foundation is committed to the principles of equal employment opportunity and to compliance with the law. GVF’s policy is to make all employment-related decisions without regard to race, sex, age, marital status, sexual orientation, religion, national origin, or disability. 

Application Process

The search for the new Executive Director is being conducted for GVF by The Moran Company. To apply for this position, submit a cover letter and resume to Steven Byers at The Moran Company. Resumes should be chronological, and include all professional education and experiences, dates of employment, titles and organization names. Questions can be directed to Steve Byers at Steve.Byers(at)MoranCompany.com.

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